International Niemann–Pick Disease Alliance

Updates

  1. Update #15 on the AIDNPC Clinical Programme

      Update #15 on the AIDNPC clinical programme (arimoclomol in treatment of Niemann-Pick disease type C) Conference call with patient organizations (30 MAR ’17) Available for download in English, French, German, Italian, Polish, and Spanish   SUMMARY 002 Study:...

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  2. CTD Holdings Initiates Recruitment for U.S. Phase I Clinical Study of Trappsol® Cyclo™ for Treatment of Niemann-Pick Disease Type C Patients to be Enrolled at Children’s Hospital & Research Center Oakland

    Available for Download ALACHUA, FL – (Marketwired) – March 23, 2017 – CTD Holdings, Inc. (OTCQB: CTDH), a clinical stage biotechnology company that develops cyclodextrin-based products for the treatment of disease, today announced that it has begun recruiting patients...

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  3. Orphazyme: Update #13 on the AIDNPC Clinical Programme

    Update #13 on the AIDNPC clinical programme (arimoclomol in treatment of Niemann-Pick disease type C)  (Available for download in English, French, German, Italian, Polish, and Spanish) Conference call with patient organizations (26 JANUARY ’17)   SUMMARY 002 Study: Recruitment...

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  4. CTD Holdings Receives FDA Fast Track Designation for Development of Trappsol® Cyclo™ to Treat Niemann-Pick Disease Type C

    ALACHUA, FL — (Marketwired) – 1/17/17 — CTD Holdings, Inc. (OTCQB: CTDH), a clinical-stage biotechnology company that develops cyclodextrin-based products for the treatment of disease, today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track...

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  5. Wylder Nation link with Perlara

    The Wylder Nation Foundation, which seeks treatment for acid sphingomyelinase deficiency (ASMD) NPD type A, has partnered with biotech company Perlara: Perlara PBC, a company with a focus on ‘finding treatments for rare diseases previously believed to be too...

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  6. Perlara PBC Announces Patient Advocacy Group Partnerships

    Perlara PBC Announces Patient Advocacy Group Partnerships – News Press Release | PharmiWeb.com SAN FRANCISCO, Jan. 10, 2017 /PRNewswire/ — Perlara PBC, a global patient portal and drug discovery platform company for the 1 in 10 families affected by...

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  7. ASMD NP-B Enzyme Therapy: Luiz Henrique

    Just last week we happily reported that three year old Isadora, had became the first patient of her age to receive enzyme therapy for ASMD Niemann-Pick disease type B. This tremendous news filled everyone connected to the INPDA with a sense...

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  8. Orphazyme: Update #12 on the AIDNPC Clinical Programme

    Update #12 on the AIDNPC clinical programme (arimoclomol in treatment of Niemann-Pick disease type C)  (Available for download in English, French, German, Italian, Polish, Spanish) Conference call with patient organizations (22 DECEMBER ’16) SUMMARY 002 Study: Recruitment into the...

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  9. The First Three Year Old Patient to Receive Enzyme Therapy for Niemann-Pick Type B

    A constant smile and strong personality are just two traits of Isadora, a Brazilian girl who has became the first three year old in the world to receive enzyme therapy for Niemann-Pick type B disease. Upon hearing this news...

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  10. CTD Holdings Files Clinical Trial Application with Italian Drug Agency to Continue Advancing Trappsol(R) Cyclo(TM) Drug Development Program to Treat Niemann-Pick Disease Type C

    Marketwired Dec 21, 2016 8:00 AM ALACHUA, FL–(Marketwired – December 21, 2016) – CTD Holdings, Inc.(CTDH), a clinical-stage biotechnology company that develops cyclodextrin-based products for the treatment of disease, today announced its filing of a Clinical Trial Application (CTA) with...

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