International Niemann–Pick Disease Alliance

Webinar: The impacts of olipudase alfa on pediatric patients with ASMD and their families

We are pleased to be able to share the following collaborative webinar entitled The impacts of olipudase alfa on pediatric patients with ASMD and their families: Results of an international survey,  which was hosted by the International Niemann-Pick Disease Alliance (INPDA), International Niemann-Pick Disease Registry (INPDR) and the National Niemann-Pick Disease Foundation (NNPDF) on Thursday, May 12, 2022.

Speakers featured in this webinar include; Sandy Cowie, President, International Niemann-Pick Disease Alliance (INPDA), Conan Donnelly, CEO, International Niemann-Pick Disease Registry (INPDR), and Justin Hopkin, Chair, National Niemann-Pick Disease Foundation (NNPDF).

You can watch the webinar in full, here.

Many thanks to all of those who attended and watched the webinar, we hope you found it informative and worthwhile, please do share this link with all of those in your network/community who may find it useful. 

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