International Niemann–Pick Disease Alliance
The International Niemann-Pick Disease Alliance (INPDA) has organised a letter (see below) voicing the perspective and concerns of the NPC community, which will be sent to the European Medicines Agency (EMA) next week. Families also have the opportunity to support by adding their signature using this link: https://forms.gle/oZw91YVTn3ivWU348
INPDA Letter to CHMP March 2022