International Niemann–Pick Disease Alliance
Founder and Chair of the Taiwan Niemann-Pick Disease Patient Group, Chin Huei Wu (巫錦輝), gave a rousing presentation at the NPUK Annual Family Conference & Interactive Workshop on Niemann-Pick Disease (2017) in which he gave the story of his family’s life, living with Niemann-Pick disease:
NPUK is currently preparing for their next Annual Family Conference & Interactive Workshop on Niemann-Pick Disease, which will take place on the 21st-23rd September at Wyboston Lakes Bedfordshire. For further information please visit: www.npuk.org.