International Niemann–Pick Disease Alliance

Improving Diagnosis

Think Again. Think NP-C

NP-C_banner_purple

NP-C is commonly undetected or misdiagnosed. This is often due to its highly variable clinical presentation characterised by a wide range of symptoms that individually are not specific to the disease.

Due to its challenging presentation the journey to diagnosis of NP-C can be long and frustrating for patients and their families. The average delay in diagnosis is five to six years from onset of neurological symptoms.

Think Again, Think NPC is an international campaign led by the INPDA, rolled out by local patient groups. It aims to improve diagnosis of NP-C by supporting healthcare professionals who are unfamiliar with NP-C to recognise the key signs and symptoms of the disease. This will help patients by speeding up diagnosis so patients can access treatment and support.

Visit the campaign website www.think-npc.com for more information and to join the campaign!

Watch the Think Again. Think NP-C campaign showreel

Think Again. Think NP-C Infographic

The infographic highlights key information about Niemann-Pick type C disease and the Think Again. Think NP-C campaign in an easy to understand and visually engaging way. Download it here and share with healthcare professionals – you could ask them to display it in their hospital department.

Join the Registry

Calling all patients and carers! We've created a global registry of all NPD patients - if you're not enrolled yet, join us now...

Think Again. Think NP-C

Join our international campaign to improve diagnosis of NP-C!